Navigating the Medical Maze
I'm honored to have been asked to guide someone through an exciting new medical therapy to treat a genetic condition.
Medical advocates are people whose purpose is to sit with a patient during medical visits, take notes, ask questions if things aren't clear, and advocate for the patient if needed. Often, particularly with serious diagnoses, patients are not able to hear, process, and remember everything that is said during the barrage of information, treatment options, pros and cons of each, pain management issues, and so on. Having a medical advocate present ensures this is all covered so the patient can evaluate all the information in a less stressful environment and much longer time frame. It is often useful to have this person not be a family member, who is similarly facing a lot of information that will impact him or her directly.
If the medical advocate is also capturing the information graphically, along with the patient's hopes, fears, dreams, and is able to motivate them through the treatment -- how much more powerful could this be? I'm excited to see. Stay tuned!